Well, I can't speak of the Japan of this story ( that has some really out there notions about personal liberty and responsability , if you haven't noticed yet ), but making genetic tests on a person without her knowledge and witholding the results would be a double crime pretty much everywere in our world. ( ok, technically his parents could had consented on the tests , but not saying a person or his legal representatives there is a disease is a BIG no no )
But the real treat is that aparently if, I understand the translation correctly, Misaki says that there are ways of mitigating/cure the disease, but they don't do it because of "ethics". Seriously, "ethics"? First , it goes against the Hippocratic oath to not treat a patient when there is a avaliable treatment ( while there are some exceptions, none apply here ) and second, in most countries doctors have a duty ( not a right, mind that, a duty ) to assist anyone ill as long as it is possible to them ( say, if a doctor sees someone having a heart attack in the street, he can go to jail if he looks the other side and goes away ). In other words, it would be unetical and illegal in most places to do so ... But not in this Japan ,aparently .
I guess this only means that most likely the whole notice system is probably just tangentially linked to increase the birth rate and it is more a soft eugenics program. Think about it: they test genetically the kids, pair out the "undesirables", pair in the "good ones" and obviously don't say a thing to anyone about it.
That is Psycho-Pass levels of casual darkness
